Thanks for joining me! I look forward to all who take this journey with me and learn more about Crohn’s Disease, chronic illness, hope and inspiration, and my story!
Good company in a journey makes the way seem shorter. — Izaak Walton
My thought for today: Crohn’s Disease is not very well known. When I have told people I have a chronic illness that means something. Almost everyone has someone close to them who has suffered the difficulties and suffering associated with a chronic illness.
Typically people think well he must have diabetes or back pain or maybe arthritis. When I follow-up with saying, “I have Crohn’s Disease” that often does not mean anything because the general public often does not have any idea what the symptoms of the disease are and what it is like to live with them. Generally, I explain Crohn’s Disease like this: I have an auto-immune disorder, where my body’s own immune system is attacking myself, in my case my digestive system. This leads to pain, inflammation, surgeries in my case, the need for powerful and dangerous medications, and generally I feel like I have a bad case of the flu everyday in terms of symptoms.
When people want to know more about Crohn’s Disease or how I feel, they will ask or body language will indicate genuine care and concern. It is not up to every person who has a chronic condition to explain it to everyone they meet. Save your explanation when you feel like doing it. So when asked about it I will try and understand is this person interested or not? If a person is interested I find this to be a great opportunity to provide education and personal insight into my health condition and usually this leads to a conversation about a health problem that the other person or family member is going through!
It turns out that the human condition often leads to suffering of some kind and therefore; I have found support and reduced the isolation that chronic illness causes by starting to share my story. It has not been easy for me as I tend to be stoic and keep my health problems to myself, but I find there is a great benefit to others and myself in sharing when appropriate!
I look forward to all who take this journey with me and learn more about Crohn’s Disease, chronic illness, hope and inspiration, and my story!